Title: Old Before My Time: Hayley Okines’ Life With Progeria
Co-authored by : Hayley and Kerry Okines
This is not a book review. How does one review a book mostly written by a 13 year old whose body is, in her own words “‘almost a hundred years old when I am actually thirteen.”?
It is a story told by Hayley and her mother Kerry, attempting to bring to focus to her condition: Hutchinson-Gildford Progeria – a condition that makes her age eight times faster than other people.
Hayley lives with great courage and wisdom. But most of all she and her family have been instrumental in bringing a lot of attention in Britian and the US towards raising funds for The Progeria Research Foundation. Travelling to the US for treatment, Hayley caught the imagination of various television networks there and around the world.
She inspired British singer-songwriter Jane Winiberg to write and produce a song ‘Voices of Tomorrow’ to raise funds. Hayley also inspired the Chelsea football team to raise funds for the Foundation.
Hayley has been receiving treatment and the drugs trials have been giving her hope. Let me share with you an extract from the introduction to the book which is written by Hayley:
I am not worried about dying. They said the Titanic wouldn’t sink but it did, so that proves experts can be wrong and I want to prove the doctors wrong.
Let us hope Hayley does prove them wrong.
You can follow Hayley on her website: Hayley’s Progeria Page.
Today we’re on O of the Blogging From A to Z April Challenge.
- Adalia Rose: The six-year-old girl with body of an old woman due to progeria (thisismoney.co.uk)
- Inside the Lives of Kids With Progeria-20/20 special (thehandiestone.typepad.com)