Old Before My Time: Hayley Okines’ Life With Progeria

Old Before My Time: Hayley Okines' Life with Progeria by Hayley and Kerry Okines

Old Before My Time: Hayley Okines‘ Life with Progeria by Hayley and Kerry Okines

Title: Old Before My Time: Hayley Okines’ Life With Progeria
Co-authored by : Hayley and Kerry Okines

This is not a book review. How does one review a book mostly written by a 13 year old whose body is, in her own words “‘almost a hundred years old when I am actually thirteen.”?

It is a story told by Hayley and her mother Kerry, attempting to bring to focus to her condition: Hutchinson-Gildford Progeria – a condition that makes her age eight times faster than other people.

Hayley lives with great courage and wisdom. But most of all she and her family have been instrumental in bringing a lot of attention in Britian and the US towards raising funds for The Progeria Research Foundation.  Travelling to the US for treatment, Hayley caught the imagination of various television networks there and around the world.

She inspired British singer-songwriter Jane Winiberg to write and produce a song ‘Voices of Tomorrow’ to raise funds. Hayley also inspired the Chelsea football team to raise funds for the Foundation.

Hayley has been receiving treatment and the drugs trials have been giving her hope. Let me share with you an extract from the introduction to the book which is written by Hayley:

I am not worried about dying. They said the Titanic wouldn’t sink but it did, so that proves experts can be wrong and I want to prove the doctors wrong.

Let us hope Hayley does prove them wrong.

You can follow Hayley on her website: Hayley’s Progeria Page.

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Today we’re on O of the Blogging From A to Z April Challenge.

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About CorinneRodrigues

A Mumbai-based blogger, writer, motivator - journeying happily through midlife. I blog here and on Write Tribe and From 7Eight. Connect with me on Facebook, Twitter and Google+

Comments

  1. Pheno Menon says:

    It requires strength to carry on in this condition. There was a movie starring Robin Williams with the same concept. (Not too sure but I think it was called Fred)

    PhenoMenon
    http://capturedalive.wordpress.com/2013/04/17/orange-orb/

  2. Hi Corinne,

    My heart goes out to those suffering from Progeria, as I’ve read about this dreaded diseases. Just makes us feel so grateful for the life we’ve been given – isn’t it? Yet, some of us tend to never stop cribbing!

    Hope and pray that Hayley Okines proves the doctors wrong. She seems to be so confident, and having such a belief is half the battle won I feel.

    Thanks for sharing this with us. You’re surely half way through the challenge – so here’s cheering you up to keep going, because you are doing great 🙂

  3. I hear a lot about Progeria 🙁 ! Hats off to the optimism of the girl
    May her wish come truee !

  4. It always baffles me to see such individuals with so much going against them, so full of positivity while we, mere human-beings are so cynical and jaded with so much going for us. May Hayley’s dreams come true!

  5. The intro you shared made me all misty…in a good way! May her hopes Triumph over the illness. And Corinne, thank you for who you are 🙂 Cheers, L

  6. The positivity, the hope, despite facing such a challenging condition is simply awe-inspiring! May her wish comes true. The movie, Paa starring Amitabh and Abhishek Bachchan was on this condition Progeria.

  7. Her positivity & optimism bowls me over. May her wishes come true

  8. I applaud the spirit of this young girl and her mother. Instead of feeling depressed about her condition, this young girl has chosen to fight back with her spirit and belief that she will get better. May it happen for her.

  9. I hope she carries on with her positive attitude. That is everything when battling any of life’s battles. Thank you for sharing!

  10. Hayley is a girl of strength and courage. I remember seeing her on Television and I was so impressed with her determination to fight the disease and carry on. Hope her wish to prove the Doctors wrong come true.

  11. All the best Harley to put all pessimist wrong!

  12. Seems like an inspiring story !

  13. She is such an inspiration!

  14. I hope and pray that she proves the doctors wrong. May she remain as positive and courageous forever.

  15. Such a brave girl she is! And, the work she is doing is also commendable.

  16. Hayley is an inspiration to all us. Her message should give us all strength and faith when we feel we have no more. Thanks Corrine for sharing her story with us!

  17. Diane @ Me, Him And The Cats says:

    I hope they can find what causes it, so that they can find a way to cure, or at least slow it down significantly!

  18. What a hard trial to live with.

  19. Such a motivating person, who thinks positive!

  20. I’d heard of progeria before; in fact, I had a friend in Italy with progeria. She was 20 years old, chronologically; she was so old physically, though, that she could hardly move. She was the sweetest and happiest girl.

  21. That is some book to read. I have always wondered how people with such rare diseases are actually child at heart.

  22. I am not sure when and how will i read all the books mentioned by know but i will always remain thankful to you for making me aware of so many books and authors.

    This book looks to be a heart touching one. And i am floored by her courage. Such an inspiration she is.

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